03/28/2015

Invitation to participate in a study on Pregnancy and Long QT Syndrome

Long QT syndrome (LQTS) is an inherited rhythm problem predisposing approximately 1 in 2000 individuals to serious and life-threatening heart rhythms that can result in cardiac arrest. The children of mothers or fathers with LQTS have a 50% chance of having LQTS, and even before they are born, babies with LQTS can have the life threatening rhythm problems.

                                        

Contact Information

SCAA phone: 941-331-4333
 
The SCAA headquarters address is:
Suite 800
910 17th Street NW
Washington, DC 20006
 
NOTE, it is best to send email and regular mail directly to the intended recipient. 
For invoices, corporate documents, grants and administrative matters:
Phone: 202-441-5982
 
Regular Mail:  
Sudden Cardiac Arrest Association
Attn: Richard Brown, Executive Director
6842 Turnberry Isle Ct.
Lakewood Ranch, FL 34202
 
For Program Related Matters:
Phone: 508-838-6696
 
Regular Mail:
Sudden Cardiac Arrest Association
Attn: Robert Schriever, Vice President
392 High Street
North Attleboro, MA 02760
 
 
Website for fetal Long QT study called fetallqts.com.
 
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Rick Fortner

My SCA occurred in the afternoon on Friday, January 13, 1995. I was 32 years old, and it was my second anniversary at my first job as an attorney in Portland, Oregon. I collapsed around 3:30 pm, while talking to another attorney in my office.

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